Telemedicine and Precision Medicine: From Rhetoric to Results
Boulevard Brewing Company
2501 Southwest Boulevard, Kansas City, MO 64108
Join the Heart of America Healthcare Information Management System Society, and other Greater Kansas City Healthcare Organizations to celebrate Children’s Mercy Kansas City as the recipient of the 2017 Microsoft Health Innovation Award for Cardiac High Acuity Monitoring Program (CHAMP). CHAMP is an example of telemedicine that provides results, addressing the nearly 2,000 babies who are born each year with congenital heart disease consisting of a single ventricle. CHAMP combines traditional single-ventricle home monitoring--triage services provided to highly fragile infants at home by nurse coordinators--and an innovative new app developed by the Ward Family Heart Center team at Children’s Mercy.
Children’s Mercy also developed GOLDILOKs, a precision medicine application for administration of Busulfan in Bone Marrow Transplantation. Dr. Susan Rahman will share a short overview of GOLDILOKs and how it impacts the lives of the children who depend on accurate Busulfan administration.
These are just two example of Physicians, PharmD, Informatics, Nurses, Information Technology, and others coming together to think outside the box to apply all of their expertise to life saving problems. It takes their commitment (many hours outside of a normal workday) to come up with solutions that are literally creating better patient outcomes.
Our evening will also have a charitable impact by benefiting two local nonprofits through a unique fundraising effort. Jake Jacobson, Director of PR at Children’s Mercy, is participating in the BMA Foundation’s “Dine and Dance With The Stars” event this summer, representing Noah’s Bandage Project. Jake’s goal – in addition to learning to perform a ballroom dance routine in front of 1,500 people on June 10 – is to raise $30,000 for these two nonprofits started by local families who lost sons at a young age. Noah’s Bandage Project was started by six-year-old Noah Wilson, who was tired of the same old boring brown bandaids during his cancer treatment. So he started collecting colorful bandaids for fellow patients to brighten their days, and Jake became close with Noah and his family as news outlets covered his story. Sadly, Noah lost his battle in 2015, but his family and friends have kept Noah’s Bandage Project going strong, collecting more than 56,000 boxes of bandaids and more than $200,000 for pediatric cancer research in two years. The BMA Foundation was formed in honor of Brian M. Anselmo, who attended Rockhurst High School and Mizzou and then worked with the Animal Welfare Institute before passing away suddenly at 28, and today BMA helps small nonprofits like Noah's Bandage Project raise awareness and money through events like Dine & Dance With The Stars.
We want to honor all of those who are putting in the extra effort to be innovative and truly impacting patient outcomes for the better!
Children’s Mercy Representatives:
- Richard Stroup, Director of Informatics, Ward Family Heart Center
- Jake Jacobson, Director, Public Relations
- Dr. Susan Abdel-Rahman, Pharm.D. – Chief, Section of Therapeutic Innovation
The proceeds of this event will be donated to Noah’s Bandage Project and BMA Foundation.
- 5:30-6:30 p.m. Doors open - Registration/mingling/Pizza and appetizers
- 6:30 p.m. Welcome – HIMSS
- 6:35 Jake Jacobson - About Noah’s Bandage Project and Dancing With The Stars
- 6:40-7:10 Richard Stroup – CHAMP presentation
- 7:10-7:20 Dr. Susan Rahman – GOLDILOKs Precision Medicine Application
- 7:20-7:30 Q&A from the audience
- 7:30 Raffle
- 7:30-9 Networking/Pizza and appetizers
- 9:30 Last call
Link to CHAMP Video
Children's Mercy Kansas City honored as recipient of the 2017 Microsoft Health Innovation Awards
Link to CHAMP Video:https://youtu.be/qtbNiwM-BF4